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Videos for
children, families, and those newly diagnosed
After the Diagnosis …The Next Steps
This 35-minute video was produced in 2001 expressly for
individuals and families who have received a new diagnosis of
TS. Developed to help clarify what TS is, to offer
encouragement, and to dispel misperceptions about having TS.
Features several families in excerpts from the Family Life
With TS video who recount their own experiences and
intersperses comments from medical experts. Narrated by
Richard Dreyfuss.
Family Life with Tourette Syndrome
This TSA video, produced in 2001, introduces us to 6
individuals with TS and their families: Dr. Peter, a
University professor; Reverend Mike, a former Army officer and
minister; Ryan, a teenage boy; Rachel, a teenage girl; Dakota,
a young boy; and the Turners, who have three daughters with
TS. Each vignette is about 10 minutes in length and can stand
independently or viewed as a group. This video has something
for everyone and is especially good for families of those
newly diagnosed with TS. There is a hopeful and positive
message throughout.
I’m a Person, too
In this TSA video, different people with TS share their
experiences. They include an 11 year-old girl, a doctor, a
Hispanic boy in special education classes, a 26 year-old woman
who was mistakenly placed in a school for mentally handicapped
children, and a man who is both a lawyer and a stockbroker.
The theme of this video is that what matters most is what is
inside of a person, not what is on the outside. This video is
appropriate for both children and adults.
The Jim Eisenrich Story
Jim Eisenrich, a professional baseball player in the 1990’s
with the Phillies and Marlins, talks about what it was like
growing up with undiagnosed TS, getting started in
professional baseball and subsequent career, and his role as a
husband and father. His messages are clear: TS is not
life-threatening; someone with TS can do anything that anyone
else can do; and a person with TS may have setbacks, but these
setbacks can be a learning experience. Jim has a very
positive attitude and the video is good for families, adults
and kids with TS. The video can be a bit slow at times and
may be most appropriate for older children and adults.
Oprah Winfrey Program on the book,
Icy Sparks
This program aired in May 2001 after Icy Sparks, the
story of a girl growing up in rural Kentucky in the 1950’s
with undiagnosed Tourette Syndrome, was chosen as an Oprah
Book Club selection. The staff of the Oprah program consulted
with National TSA in preparing the program and the discussion
of TS is very sensitive and accurate. There is a book
discussion and author interview at the core of the program,
but several children and teens with TS and their parents are
also profiled. Their stories are well told and candidly
address some of the challenges of living with TS and parenting
a child with TS. The program is appropriate for children and
adults.
Seventh Heaven – Episode on TS
The theme of this episode examines what happens when people
hurt each others feelings and the consequences of standing by
and doing nothing to prevent this from happening. The primary
story line is that of a boy with TS, Bobby, who exhibits
echolalia (repeating words) in church. Issues addressed are
the misdiagnosis of TS as ADD, and guilt and anguish of
parents. One of the minister’s sons befriends Bobby and
stands up to the bully that is teasing and tormenting Bobby.
Information is given about the diagnosis, symptoms, treatment
and support available for those with TS. This episode is
particularly well presented and sensitively addresses topics
of bullying and standing up for those who need support. This
video could be used with children and adults, with or without
TS. This would also be good for students at the middle school
level as a spark for discussion.
Stop it, I Can’t
This TSA video, narrated by William Shatner, begins with kids
talking about what it is like in school and in social
situations when they can’t control their tics. TS and its
symptoms are described. Shatner talks about how bad it feels
when people are teased and the importance of taking time to
get to know people with TS. The video introduces an Olympic
hopeful with TS who talks to kids about what it is like to
have TS. The message is that while TS can be a disability,
you have to try your best and always go after what you want.
Also, that TS is easier to cope with if you accept it and that
explaining it to others will hopefully lessen the teasing.
The information in this video is appropriate for adults and
kids, with or without TS. The video was produced more than 10
years ago and does seem a bit dated.
You’ve Got a Friend
Danya International produced this video in conjunction with
TSA of Greater Washington in 2000. This 11-minute video was
created for use in elementary school classes to explain TS to
the classmates of a child with TS and build understanding and
empathy in the school setting. A lively, fast moving video
that students from ages 7 to 11 will find this both
interesting and entertaining. A parent may want to consider
this video to show a newly diagnosed child with TS.
Videos about
Educational Advocacy and Learning Differences
How Difficult Can This Be? (Understanding Learning
Disabilities)
One of 3 videos by Richard Lavoie, educator and learning
disability expert. This unique program allows viewers to
experience the same frustration, anxiety and tension that
children with learning disabilities face in their daily
lives. Produced in 1989, this video features a diverse group
of non-learning disabled adults, primarily teachers, who
attend a seminar during which they “live” the experience of
having learning disabilities. They go through a number of
exercises in order to better understand and appreciate the
challenges faced by a child with a learning disability. This
video is often used as a training tool for educators who work
with students with learning disabilities.
Last One Picked, First One Picked On
This is one of three videos by Richard Lavoie, a nationally
known learning disability expert. Playing with friends is a
daily ritual for most children. However, kids with learning
disabilities are often isolated and rejected. Their problems
making and keeping friends are compounded by their poor social
skills. The challenges confronting learning disabled children
in their lives both in and out of the classroom are examined
in this video produced in 1994.
Look What You’ve
Done! Learning Disabilities and Self-Esteem - Stories of Hope
and Resilience
Whether they've
failed a spelling test or dropped an easy pop fly, kids with
learning disabilities hear those words far too often. It's no
wonder they often give up hope. Moreover, it's no wonder we
sometimes overlook what Dr. Robert Brooks calls the "every-day
courage" of our children. Dr. Brooks, a nationally known
expert on learning disabilities, says we need to find each
child's "islands of competence" and then build on those
strengths. He offers practical strategies for helping children
develop the confidence and resilience they will need to
succeed in this video produced in 1997.
The Parent’s Perspective:
Diplomacy in Action
Features E. Collins, Ph.D. and R. Fisher-Collins, M.Ed. This
45-minute video provides guidance to TS families on school
advocacy issues. This video provides parents with concrete
ideas to help insure the success of the child's school
experience.
Partnership for Special Education: What a Great IDEA!
The Virginia Parent Education Advocacy Training Center (PEATC)
produced this video shortly after the IDEA revisions in 1997.
The video features two segments – each 27 minutes in length.
The first is “The Individualized Education Plan” (IEP) - a
round-table discussion by experts of various changes in the
IEP since the re-authorization of IDEA. The second section is
“Discipline and Behavior” and, again, it uses a round-table
format and questions-and-answers to address changes in the law
regarding discipline for children with known disabilities.
When the Chips are Down: Learning Disabilities and
Discipline - Strategies for Improving Children's Behavior
One of three videos by
Richard Lavoie, a nationally known expert on learning
disabilities, offers practical advice on dealing with
behavioral problems quickly and effectively. He shows how
preventive discipline can anticipate many problems before they
start. In addition, he explains how teachers and parents can
create a stable, predictable environment in which children
with learning disabilities can flourish. This video was
produced in 1997.
Videos about Associated
Disorders
The Touching Tree
This film about Obsessive-Compulsive Disorder (OCD) follows a
young boy, Terry, at school. An especially sensitive teacher
notices his behaviors on the playground, in class, and during
lunch, and attempts to figure out what is going on. The
teacher realizes that because of his counting and hand washing
behaviors, Terry feels like an outsider. Terry only feels
good about himself while performing in the school play. After
consulting with a psychologist friend, the teacher identifies
Terry’s behaviors as those of OCD. The film then explains OCD
to the viewer and discusses the differences between obsessions
and compulsions. The film takes the viewer through Terry’s
treatment process, which includes medications, behavior
therapy, and support groups. The film ends a year later from
diagnosis on a hopeful note. The film is done in a sensitive
and hopeful manner and is appropriate for children and adults.
Videos for Older
Teens and Adults with TS and for parents of children with TS
Ally McBeal Program – 3 Episodes
featuring character with TS
Three episodes aired in January 2001 featuring Anne Heche as a
woman with Tourette Syndrome. She is a teacher, but enters
the program as a murder suspect, is exonerated in the initial
episode, and then becomes a love interest of one of Ally’s
colleagues. Although there were mixed reactions to the
initial storyline, the developing storyline was of a woman
with a rewarding career, an interesting new love interest, and
a fascinating personality – all despite her rather florid
motor and vocal tics. This video would be appropriate for
teens and adults.
The Maze
A
dramatic feature film starring Rob Morrow as a young man with
Tourette Syndrome struggling with the challenges of his TS and
a new romance.
The Tic Code
A
feature film drama starring Gregory Hines as a jazz
saxophonist with Tourette Syndrome and Polly Draper, as the
mother of a boy with TS, as his love interest. The movie was
written by Draper and is loosely based on the life of her
husband, Michael Wolff, a jazz pianist and bandleader with
TS. The music is terrific, the storyline compelling, the
information about TS is generally accurate. However, this is
an “R” rated movie, with good reason, and should be viewed
only by appropriately aged teens and adults.
Twitch and Shout
Narrated by photojournalist Lowell Handler, who has Tourette
Syndrome (TS) himself, this documentary film looks at the
lives of others with TS. The viewer is introduced to four
adults with TS – and actress with mild symptoms, Chris Jackson
(Abdul Mahmud-Rauf) a basketball player in the NBA, a Canadian
artist, and an elderly member of the Mennonite community.
Each of these adults, with varying degrees of TS, explains
what it is like to live the TS and symptoms of OCD, which
often accompanies TS. We also hear from attendees at the TSA
National Conference. Candid discussions about the impact of
TS on professional lives, as well as more personal aspects of
dating and getting married, are presented. This video has a
positive perspective and offers a very candid look at life
with TS.
Videos for Educators
A Regular Kid, That’s Me!
This video by TSA, directed toward teachers, explains the
complexities of TS, illustrates how TS affects the behavioral
and educational performance of students with TS, and attempts
to provide teachers with the confidence to develop an
appropriate education plan for students with TS. Criteria for
diagnosis are given, and teachers discuss positive ways to
deal with tics in the classroom (e.g. educate the other
children about TS, provide breaks when needed, etc.).
Disorders associated with TS (ADD, OCD) and their implications
are presented. Students with TS also give their point of view
on what it is like to have TS and how they feel when kids make
fun of their tics. Accommodations and intervention strategies
for students using a team approach are discussed. The message
is that teachers need to be accepting and flexible when
working with students with TS. This film has good
information, but was produced in 1990 and looks a bit dated.
Still, it’s probably the best choice for teachers to view if
they are not also receiving an in-service program. This video
is part of the TSA Educational Curriculum package.
Teaching Children With Tourette Syndrome: A Resource
for Educators
Produced by National TSA in 2001, this video clarifies some of
the challenges inherent in teaching children with TS. This
video features teachers, education specialists, and physicians
discussing issues relevant to the school environment. This 15
minute video can stand alone or be used as apart of an
in-service presentation.
Videos for Health
Care Professionals, Service Providers, Counselors, and
Advocates
The Complexities of TS Treatment: A Physician’s Roundtable
Three internationally recognized TS experts, Drs. Cathy Budman,
Joseph Jankovic and John Walkup. provide colleagues with
valuable information about the complexities of treating and
advising families with TS. Emphasis is on different clinical
approaches to patients with a broad range of symptom
severity. Co-morbid and associated conditions are covered.
This video was produced by TSA in 2001 and is 15 minutes in
length.
Not the Usual Suspects
This Canadian-made film is directed to law enforcement
officers and it attempts to educate them about TS. Symptoms
of TS can often be confused with intoxication, drug use, or
threatening behavior. People with TS need to identify
themselves to police who may or may not be familiar with the
condition. Various people with TS talk about their symptoms
and what they would hope to do if approached by police about
their tics or behavior. The message is that police officers
can learn to recognize the symptoms of TS if they receive
information about the condition. This video is appropriate
for use by attorneys and in educating police officers.
Tourette Syndrome: A Guide for Diagnosis
This 30-minute video was developed in 1990 as an aid for
medical professionals in diagnosing Tourette Syndrome. The
video presents seven patients exhibiting the full range of TS
symptoms along with demonstrations of other movement disorders
for differential diagnosis. This video was developed for
health care provider in-service presentations.
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