For parents of children newly diagnosed with TS

 

Tourette’s Syndrome: Tics, Obsessions, Compulsions by James F. Leckman and Donald J. Cohen: 1999

 

Ryan: A Mother’s Story by Susan Hughes: 1990

 

Coping with Tourette Syndrome and Tic Disorders by Barbara Moe: 2000

 

Tourette Syndrome: The Facts by Mary M. Robertson and Simon Baron-Cohen: 1998

 

Children with Tourette Syndrome: A Parent’s Guide – edited by Tracey Hearle: 1992

 

Living with Tourette Syndrome by Elaine F. Shimberg: 1995

 

 

For adults with Tourette Syndrome and associated disorders

 

Staring Back: The Disability Experience from the Inside Out – edited by Kenny Fries: 1997

 

Living with ADHD: A Practical Guide to Coping with ADHD by Rebecca Kajander: 1995

 

When Once is not Enough: Help for Obsessive-Compulsives by Gail Kteketee and Kerrin White: 1990

 

Driven to Distraction: Recognizing and Coping with ADD from Childhood through Adulthood by Edward    Hallowell and John J. Ratey: 1994

 

On Playing a Bad Hand Well by Mark Katz: 1997

 

Twitch and Shout by Lowell Handler: 1998

 

The Unwelcome Companion by Rick Fowler: 1996

 

My Dance with Tourette: Personal Reflections by Laurie Rosenblum: 2000

 

For children and teens with TS and associated disorders

 

Hi! I’m Adam by Adam Buehrens: 1991

 

God Made Me Special! By Ryan C. Farrell: 1993

 

Adam and the Magic Marble by Adam and Carol Buehrens: 1991

 

Body with a Mind of its Own by Rose Wood: 1993

 

Survival Guide for Kids with LD (Learning Differences) by Gary Fisher and Rhoda Cummings: 1990. 

 

Books on Associated Disorders

 

Raise your Child’s Social IQ: Stepping Stones to People Skills for Kids by Cathi Cohen: 2000

 

The Out-of-Synch Child: Recognizing and Coping with Sensory Integration Dysfunction by Carol S.

Kranowitz: 1998

 

Teenagers with ADD: A Parent’s Guide by Chris A. Zeigler Dendy: 1995

 

The Hyperactive Child, Adolescent, Adult:  ADD through the Lifespan by Paul H. Wender: 1987

 

The Bi-Polar Child: The definitive and reassuring guide to childhood’s most misunderstood disorder by

Demitri F. Paulos, M.D. and Janice Papolos: 1999

 

The Explosive Child by Ross W. Green, Ph.D.: 1995

 

The Special Education Process

 

Wrightslaw: Special Education Law by Peter W.D. Wright and Pamela D. Wright: 1999

 

Better IEP’s:  How to develop Legally Correct and Educationally Useful Programs by Barbara Bateman and Mary Anne Linden:  1998

 

Back to School on Civil Rights: Advancing the Federal Commitment to Leave No Child Behind by the National Council on Disability: 2000

 

Teaching the Tiger: Handbook for Educators by Marilyn Dornbush, Ph.D. and Sheryl Pruitt, M.Ed.: 1995

 

Special Education Rights…and Wrongs by Maryland Disability Law Center, Inc.: 1999

 

 

Book Summaries

 

 

Adam and the Magic Marble. Adam and Carol Buehrens. 1991.

Fiction by author of Hi, I'm Adam and his mother. Heroes are two youngsters with TS and a third with cerebral palsy.  

 

Attention Deficit Disorder and Learning Disabilities.  Realities, Myths and Controversial Treatments. 

Barbara D. Ingersoll and Sam Goldstein.  1993.  New York: Doubleday.

This book on Attention Deficit Disorder (ADD), also referred to as Attention Deficit Hyperactivity Disorder (ADHD), and learning disabilities (LD) is written for parents, educators, and health-care professionals.  Current knowledge on the causes, assessment, and treatment of ADHD and learning disabilities is summarized.  Myths and misconceptions that have led to confusion about ADHD and LD are discussed.  Methods used by the scientific community to evaluate new treatment methods are described, as are effective treatments for ADHD and LD.  Evaluation of these treatment methods are then compared to the way in which some “alternative treatments” gain attention.  An overview of successful treatment approaches is provided.  Controversial treatments, such as the use of vitamins and supplements, dietary interventions, and therapy, are also discussed. 

 

Attention Deficit Disorder, Hyperactivity and Learning Disabilities: Current Theory and Practical Approaches, Martha B. Denckla, MD, guest editor, 1989: Presentations at Kennedy Krieger Institute conference on ADD.

 

The Attention Zone.  A Parents’ Guide to Attention Deficit/Hyperactivity Disorder. 

Michael Cohen.  1998.  Washington, DC:  Taylor & Francis.

This book provides parents with facts and advice on raising children with ADHD.  Information is presented on symptoms, coexisting conditions, causes, diagnosis, treatment, and the impact of ADHD on families.  The author also addresses various treatment issues such as psychological therapies, stimulant medications, other medical therapies, nontraditional therapies, and special adolescent concerns.   Commonly asked questions regarding ADHD and medical therapy are addressed.  Strategies for home and school management are discussed.  Also included are organizational strategies for parents, glossary, and information resources.

 

Back to School on Civil Rights.  Advancing the Federal Commitment to Leave No Child Behind. 

National Council on Disability.  January 25, 2000.  Washington, DC:  National Council on Disability.

This report examines the more than  25 years of federal monitoring and enforcement of compliance with Part B of the Individuals with Disabilities Education Act (IDEA).   The report, based on an analysis performed by the National Council on Disability (NCD), found that efforts to enforce this law have been inconsistent, insufficient, and ineffective.  Recommendations are made for a more aggressive, credible and meaningful federal approach to enforcing this civil rights law.

 

Better IEPs. How to Develop Legally Correct and Educationally Useful Programs. Third Edition. 

Barbara D. Bateman and Mary Anne Linden.  1998.  Longmont, CO:  Sopris West.

The process of preparing Individualized Education Programs (IEPs) is a key component of the Individuals with Disabilities Education Act (IDEA).  This book provides educators and parents with information necessary to develop legally correct and educationally useful IEPs.  The role of the IEP in relation to the IDEA is examined, as is how to prepare a legally correct  IEP, in terms of who, how, when, where, why, and what must be included in the IEP.  Attention is focused on the three-step IEP development process using examples to illustrate key points.  Several areas of contention regarding the IDEA are examined together with the judicial decision and agency rulings that clarify these issues.  Appendices include:  the IDEA  statute; IDEA regulations; appendix to regulations that interprets IDEA requirements; and model notification to parents of their rights under the IDEA.

 

The Body With a Mind of Its Own. Rose Wood, 1993

Fictionalized account of TS to help parents and children with TS explain the disorder to friends, relatives, teachers and students. This book is directed to an elementary school setting and has age appropriate dialogue.

 

Children With Tourette Syndrome: A Parent's Guide. Edited by Tracy Hearle, 1992

Experts offer information/guidance on a variety of TS subjects including TS definition, medical treatments, relationship of affected child with the family and potential educational needs.  Introduction provided by Jim Eisenreich.

 

Coping with Tourette Syndrome and Tic Disorders.  Barbara Moe.  2000.  New York: The Rosen Publishing Group, Inc.

This informative book provides general information on Tourette Syndrome (TS), tic disorders, and related disorders such as ADHD, OCD, behavior problems, sleep difficulties, and learning differences.  Much of the book is directed to individuals with TS, but can and should be read by parents, educators, and anyone interested in TS.  A section on maintaining positive self-esteem and avoiding depression is included.  Sources of support and strategies for stress reduction are provided, as are strategies for coping with TS and related conditions.  Laws and regulations affecting education are presented as are suggestions for planning one’s future.  A section is also included for people who have had someone close to them diagnosed with TS.  Sources of support and suggestions for further reading are included.

 

Driven to Distraction.  Recognizing and Coping with Attention Deficit Disorder from Childhood through Adulthood.  Edward M. Hallowell and John J. Ratey.  1994.  New York: Touchstone.

Using examples of patients’ experiences and interviews, this book examines Attention Deficit Disorder (ADD) in both children and adults.  Diagnostic criteria for adult ADD is presented.  Also discussed is the impact of ADD on the family and the various subtypes and secondary symptoms associated with ADD.  Diagnosis and treatment options are presented.  Information on the biological nature of ADD is described.  The appendix lists organizations to contact for information on ADD, suggested readings, and support groups.

 

God Made Me Special!!!! Ryan C. Farrell: 1993.  Personal story of a junior high school student with TS, published three years after he was diagnosed.  A Children Writing for Children book.

 

Hi, I'm Adam. Adam Buehrens, 1991

First person account of 10 year old with TS. Written for children, it will help parents view TS from a child's perspective.

 

The Hyperactive Child, Adolescent, and Adult.  Attention Deficit Disorder Through the Lifespan.

Paul H. Wender.  1987.  New York:  Oxford University Press.

The understanding of hyperactivity and the best techniques for managing a hyperactive child are explained to parents.  Frequently asked questions are answered and helpful suggestions for dealing with hyperactive children are described.  Characteristics of ADD, causes, treatment, and development of kids with ADD are explored in detail.   ADD in adults is also examined.  Finding help for ADD in both children and adults is discussed.   The author uses the term ADD to refer to both ADD with and without hyperactivity. 

 

Kid Cooperation.  How to Stop Yelling, Nagging & Pleading and Get Kids to Cooperate. 

Elizabeth Pantley.  1996.  Oakland, CA:  New Harbinger Publications, Inc.

This book presents parents with skills necessary to effectively communicate with their kids.  Techniques are designed to help parents listen to and control their anger.  Chapter 1 begins with a quiz to determine parenting style and is followed by chapters on cooperation, punishment versus discipline, how to build a child’s self-esteem, how to nurture sibling relationships, and anger management.  Parents are reminded that in order to take care of everyone else in the family they must first take care of themselves.  Each chapter ends with a reminder page that highlights the key concepts discussed in that chapter.

 

Living with ADHD.  A Practical Guide to Coping with Attention Deficit Hyperactivity Disorder. 

Rebecca Kajander.  1995.  Minneapolis, MN:  Institute for Research and Education HealthSystem Minnesota.

Written for parents of kids with ADHD, this guide provides practical information on coping effectively at home, school, and in social settings.  An overview looks at what ADHD is, the difference between ADD and ADHD, diagnosis, and strategies for managing ADHD.  Information on medications is provided and includes: questions and answers about Ritalin, medication usage for ADHD, and medications for teenagers.  A chart of commonly used ADHD medications provides information on generic name, advantages, dosages, side effects, and cautions.  A chapter is dedicated to living with ADHD one day at a time and includes information on building self-esteem and social skills.  Resources are included at the end of the book

 

Negotiating the Special Education Maze.

Winifred Anderson, Stephen Chitwood, Deidre Hayden. 1990.

Basically the same as An Education Handbook for Parents of Handicapped Children. Emphasizes that the parent is the expert on the child.

 

 

The Out-of-Sync Child.   Recognizing and Coping with Sensory Integration Dysfunction. 

Carol Stock Kranowitz.  1998.  New York: Berkley Publishing Co.

This book on Sensory Integration (SI) Dysfunction, the inability to organize sensory information for use in daily life, offers creative ideas on helping the child or adolescent handle challenges with family, peers, and school situations.    It is written for parents, grandparents, teachers, doctors, and anyone who cares for an out-of-sync child.  Part I of this book focuses on recognizing sensory integration dysfunction and includes an overview of SI dysfunction and how it affects children’s behavior.  Checklists and questionnaires are included to help in the identification of problems with the tactile, vestibular, and proprioceptive senses.  Part II of this book provides information on coping with SI dysfunction, including diagnosis and treatment, and coping strategies for home and school.  Also included is an appendix explaining the role of the central nervous system in sensory integration, resources, recommended reading list, bibliography, glossary, and index.

 

Raise Your Child’s Social IQ.  Stepping Stones to People Skills for Kids. 

Cathi Cohen.  2000.  Silver Spring: Advantage Books.

This book provides parents with a step-by-step approach to teach social skills to their children.  These skills include joining in with others; communicating with others; reading social signals and cues from others; raising self-esteem; coping with teasing; managing stress; solving social problems; resolving conflicts; managing anger; and putting all of these skills together.  Each chapter, devoted to a single skill, includes goals, a quiz, checklists, games and exercises, and a series of steps for parents to use to help their child develop a specific skill.

 

Ryan.  A Mother’s Story of Her Hyperactive/Tourette Syndrome Child. 

Susan Hughes.  1990.  Duarte, CA:  Hope Press.

Written for parents of hyperactive, ADD, and Tourette Syndrome children, this book chronicles one mother’s struggle to explain the behavior of her son, Ryan.  The author takes the reader from Ryan’s birth to age nine, sharing her son’s behaviors and their family’s struggle to obtain the eventual diagnosis of hyperactivity and Tourette Syndrome. This mother openly shares her feelings and emotions as she goes from one doctor to another to obtain the neurological diagnosis.  The author shares her coping strategies and advises readers to take one day at a time.

 

Staring Back.  The Disability Experience from the Inside Out. 

Edited by Kenny Fries.  1997.  New York:  Penguin Putnam Group.

Written by a variety of authors with disabilities, this book is a collection of nonfiction, poetry, fiction, and drama.   This anthology strives to eliminate the myth that disabilities limit a person’s insight and productivity.

 

The Survival Guide for Kids with LD* (Learning Differences). 

Gary Fisher and Rhoda Cummings.  1990.  Minneapolis,MN:  Free Spirit Publishing, Inc.

Written for kids, this book answers questions about why some people have learning disabilities (LD) and why it is hard for kids with LD to learn.  The five types of LD and school LD programs are explained.  LD kids are offered reassurance and advice on how to deal with sad, hurt, and angry feelings.  Tips are offered on how to get along in school and at home, what to do when being teased by other kids, and how to keep and make friends.  Information on what happens when LD kids grow up and prospects for the future are discussed.  Recommended resources for parents and teachers are included.

 

Teaching the Tiger

 Marilyn P. Dornbush, PhD, and Sheryl Pruitt, MEd, 1995

 The first and only educator’s handbook for those teaching students with TS, ADD and/or OCD.  A comprehensive approach to developing accommodations and modifications that work, writing an appropriate IEP, and understanding the neurological basis of the disorder and the manner in which that affects learning.

 

Teenagers with ADD. A Parents’ Guide. 

Chris A. Zeigler Dendy.  1995.  Bethesda. MD: Woodbine House, Inc.

Addressed to teenagers with ADD, their parents, educators and mental health professionals, this book discusses issues such as inattention, impulsivity, academic difficulties, disobeying parents, sports participation, driving privileges, speeding tickets, sleep disturbances, drug and alcohol experimentation, and college attendance.  Current diagnostic criteria and research findings about the causes of ADD are also included.  Common academic and behavioral problems in the classroom are discussed as are common interventions.  Information on federal laws, educational opportunities after high school, and parent advocacy are also included.

Tourette Syndrome. The Facts. 

Mary M. Robertson and Simon Baron-Cohen.  1998. Oxford University Press.

Written by a psychologist and psychiatrist from the United Kingdom, this book is directed to people with TS and their family and friends, but also provides useful information to physicians and educators.  The book opens by introducing three case histories of people with Tourette Syndrome (TS) and then proceeds to answer questions about the cause, diagnosis, and treatment of TS.  The procedure for assessing TS and distinguishing it from other conditions is described.  Information is provided on coping with the diagnosis of TS, including emotional reactions, effects on family members and parent’s marriage, discussing this diagnosis with the affected child, and telling friends and relatives. The impact on education and problems at school  is discussed.

 

Tourette's Syndrome: Tics, Obsessions, Compulsions.

James F. Leckman and Donald J. Cohen, editors.  1999.

The comprehensive tome on TS and associated disorders.  Academic-style essays by Yale personnel and others involved in TS clinical work and research.  Includes a chapter on the role of voluntary organizations in clinical care, research, and public policy.

 

Tourette Syndrome and Human Behavior,

David Comings, MD. 1990.  

How a common gene may control wide range of human behavior.  Includes sections on genetics, behavior, cause, treatment and conclusions.  Claims to be for lay reader as well as health/education professionals.

 

Twitch and Shout.

Lowell Handler. 1998.

A photographer with TS -- undiagnosed for years - recalls growing up with TS and sets out to find others who don't conform to conventional standards.  He meets people with TS and puts a name on his disorder.  Autobiography.  A documentary film is also available.

 

The Unwelcome Companion.

Rick Fowler. 1996.

Autobiographical musings of a musician and engineer from a small town in Georgia who was diagnosed with TS at age 32.

 

When Once is Not Enough.  Help for Obsessive Compulsives. 

Gail Steketee and Kerrin White.  1990.  California: New Harbinger Publications, Inc.

Written for patients with Obsessive Compulsive Disorder (OCD) and their families and friends, this book defines and describes OCD and emphasizes the practical application of treatment with behavior therapy and medication.    Hypotheses about how and why OCD develops are discussed.  Research findings about psychological treatments are described.  Practical instructions for carrying out behavioral exposure and ritual prevention by oneself or with a therapist are provided.  Medications and other treatments used for OCD are also detailed.

 

Wrightslaw:  Special Education Law.

Peter W. D. Wright and Pamela Darr Wright.  1999.  Hartfield, VA:  Harbor House Law Press.

Written for parents of a child with a disability, teachers, service providers, attorneys, and advocates, this book provides answers to questions about special education statutes, regulations and case law.  Divided into five sections, information is provided in the following areas:  law and special education law overview; special education and the Individuals with Disabilities Education Act; civil rights and discrimination as it relates to disabled children; records, confidentiality and the Family Educational Records Privacy Act (FERPA); and case law, including an overview of special education decisions by the U.S. Supreme Court and landmark Supreme Court decisions.